It has been a crazy, emotional, stressful two weeks for Nadia and I.
As you know, we had to put down our dog, Gage, on July 18th. We didn’t have long to mourn that loss when four days later Nadia was admitted to the hospital with a severe spinal fluid leak.
Nadia has been pretty ill since early April of this year. The doctor thought possible MS so she had a spinal tap on July 21st. That night was horrible!! I spoke to the doctor on-call about 10:30 that night and he was not concerned that she had back pain that Tylenol wasn’t cutting (I shouldn’t have listened to him). All night she was in excruciating pain.
So after spending all the next day at the ER she was admitted into the Neuroscience Center. The first fives hours there were less than impressive and I was getting pretty ticked off and believe me, I let everyone know it! She was in a vicious cycle of having not eaten all day because she was in so much pain and not being able to keep any pills down because she hadn’t eaten all day. I went round and round with the attending about giving her IV pain meds instead…..he didn’t care.
Then morning came and a whole new sets of nurses and doctors and the care was like night & day. Finally, people with some sense!! They got her on IV meds and made sure the orders reflected that and were not to be changed. It was a good thing because she had the same docs and nurses that night.
Thursday she received flowers, which was a lovely gesture from people that have chosen to be non-communicative & absent in her life. Then I was asked to take pics of her with the flowers and send them via text…….narcissistic much??
Then, she had three different doctors; the attending, the neuroradiologist and the neurosurgeon…..and they didn’t agree on her care…..sigh! The attending was just kind of there, mostly made decisions about meds. The neurosurgeon wanted a blood patch done, the neuroradiologist wouldn’t do it because there was already too much fluid putting pressure on her spinal chord, he certainly wasn’t going to add to it by injecting blood into her spinal sack. So they had a pow wow and decided to have her lay flat for three days hoping the leak would heal itself. So, Thursday morning began her three day stint of laying flat. Until…………..that night when she went for MRIs and they let her get up and walk around……UGH!!!!! So, we were back at square one.So, she laid flat for the weekend. Monday morning we began raising her up. She was only able to get up to 35 degrees, any higher made her sick. Tuesday was a little better and Wednesday she finally got up and walked!!! Granted, she couldn’t walk by herself but at least she was tolerating being upright!
Finally, after nine days in the hospital she was released last night at 5:00 pm!!!!!!!
I must say, hospital food has come a long way. We are both so glad to be sleeping on good beds and all night without interruptions! I now understand exactly what a CNA does, which is what my other daughter is currently taking classes for on her way to becoming an RN some day.
Today, she is able to walk by herself now but she has to take it pretty slow as she still gets dizzy and is unstable from laying down for almost a week (so I’m told that is the reason). She still has some pain so I will keep a close eye out for any returning symptoms. Keeping our fingers crossed!
Now we are dog/house sitting for the next week….something Nadia has been looking forward to which has been great motivation for her.
Thanks to all those that were praying for Nadia! Thank you to the two elders that came to the hospital and administered to her! God surely blessed her as she made great progress after that administration